"Your reason and your passion are the rudder and the sails of your seafaring soul." - Kahlil Gibran

Wednesday 31 October 2012

Responsibility

Should we not expect our patients to take some personal responsibility for their health? Along with apartheid paternalistic medicine was swept out the door in 1994. Treatment cannot be forced upon a patient who doesn't wish to take part. Our constitution very clearly reflects this principle by ever lowering the age at which consent to medical and surgical procedures may be granted. A 12 year old may now either consent to or opt out of an operation. Even if a doctor knows that the patient is choosing to walk a road which will surely be strewn with nettles, if the patient is of sound mind and has been adequately informed, she can choose not to have life-saving treatment.

Eight months ago I saw a middle aged woman at the clinic with what was clinically quite obviously a cancerous growth in the breast, threatening to break through the skin. The fact that, before presenting to me, she had already waited what must have been several months since she should have realised something unusual was growing in her, made me suspect that she was too scared to face a doctor and for her worst fears to be confirmed. Such a response is quite predictable and, of course understandable. I am not blunted to the human feelings of trepidation and doubt which we all experience. I, thus, obviously counselled the patient and explained, in simple terms, the different options available to her for obtaining local control of the tumour if not to save her life. I ran a set of tests to confirm the diagnosis and prepare the patient for a radical mastectomy within the following two weeks.

Yesterday, the same patient presented to me again at the clinic. She'd never had the mastectomy. She presented on the correct day for her scheduled surgery. An open biopsy was done and she was given another follow up date at the clinic. This is were things got hazy: the next we saw of her was earlier this week. She says admin never gave her a follow up date. Our notes clearly request a follow up date. What I'm getting at is that this patient should have made sure she got to see a doctor again. Whether or not admin booked her into the system, she should have made sure to see us again, to ask for a date. In the subsequent six months she carried that growing tumour with her every day. Surely she should have questioned what was happening to her, thought it strange that after the last surgery she never got to see the doctors again. The constitutional court of law entrusts a 12 year old to consent to an abortion which may complicate and result in a septic uterus, emergency hysterectomy and loss of the ability to ever bare children. Yet, a grown woman, fully counselled, of sound mind, could not ensure that she had a follow up date to see her surgeon.

During the six months since her last visit, the mass in her breast ulcerated through the skin forming a massive crater. It invaded her chest wall and matted her axilla. By now it would have spread to numerous other organs. In a word, it now is irresectable. The smell from that tumour is so pungent, it makes your nose sting. Local surgical control six months ago would probably not have saved her life. It would have saved her dignity.